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Can't do normal things with special needs

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As accessible as the world is trying to be it'll never be truly accessible. For most places, reasonable adjustments just means level or ramped access and maybe a disabled toilet. Some places go a bit further and allow more space for wheelchairs. Some go the extra mile and install a changing places toilet. We had a trip to Devon recently for a family wedding. The first motorway services was pretty good and had a usable changing places toilet. However the second services we stopped at, the changing places toilet was closed off. Well, they'd put a barrier in the way. The lock was smashed off and the hoist didn't work. We moved the barrier and used it anyway. Two person lift in lieu of the hoist and blocked the door with the chair. Thanks to traffic, roadworks, accidents, etc the journey took over 11 hours so it's not like we could get away without stopping. As anywhere truly accessible usually books up well in advance we had to find somewhere where we could manage. Maybe w...

Why can't people just do their job?

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As a parent to two kids with additional needs it seems like I spend too much time chasing other people to do their job. If all these supposed professionals just did they job they get paid for with prompting that would reduce my stress level by approximately 57.3% All together over the last two days I've spent about an hour on the phone to the GP surgery and then about another 45 minutes filling in forms online and about half an hour in the pharmacy. All because the surgery decided to take my kids of their books without telling me. That's over two hours of my time that could've been better spent scrolling through reels on Instagram. Anyway, here's a photo I took recently of somewhere nice a calm.

It's been a while

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 Wow, 7 years since my last post. You'd be forgiven to think I'd forgotten about this blog. Life is a lot different now. We have a house we call home, we don't live there yet but we will. Eventually. We have a team of carers that help look after the boys and we have another dog. Main headaches these days are dealing with the Deputy, architects and managing a boot load of appointments. Oh and the knacker van. Shouldn't be a knacker. It's a Mercedes but since we got it it's had a liking of going into limp whenever it feels like it. It's spent a lot of time with the local dealer and they haven't been able to fix t. So yes, it's time to start thinking about a new van. Again. I used to talk about photography on here now and then. That's changed a bit for me. I now volunteer at a local place where I run a weekly photography group for neurodivergent adults and adults with additional needs. Which is great and helps me feel like I'm part of something....