Epilepsy in a growing child is just like the sword of Damocles. Hanging over you, waiting, you don't know when, but you do know that one day it's going to fuck your shit up.
A few months ago I decided I would like to try to put together a series of photos about life with a disabled son, the problems that arise and stuff like that. I'm not 100% clear on the brief myself but I thought it will become more apparent as time goes on. Eventually I was thinking I could display these in a gallery setting of some sort, I just need to develop the concept further until I'm happy with it. I'm only got nine photos so far and I'm not even sure I'll keep all of them but I thought I'd start sharing some of them here. This is the first photo I took. It's very dark and without context it's probably hard to see what's going on. This photo was taken at 3:07am. John wakes up most nights and it can be a struggle to settle him back down to sleep. One way I try to do this is just to climb onto his bed, sit him on my knee and cuddle him. Doing it this way I can attempt to stop him throwing his arms and legs round and he settles down agai...
A few weeks ago we noticed the sink in the bathroom was leaking. Instead of doing anything about it at the time we declared the sink out of use. It wasn't until a few days ago I decided to have a look to see where it was leaking from. I though the trap was full of sink goo and water was leaking somewhere because it wasn't flowing away properly. I cleaned out the trap and a nut (I later learned that this is called a flanged back nut) that holds the pipe to the sink fell apart while I was poking at it so it seemed pretty obvious this was causing the problem. Replace the nut, fix the sink. Simple right. I went to to a local DIY shop and bought what I thought was what I needed. it was a piece of pipe with two nuts on. It was size converter thing with two nuts as I didn't know what size to get. Got it home and quickly realised that my bright idea to get both size nuts didn't work. They were the wrong type of nut. What I bought So back to the shop for the correct n...
As a parent to two kids with additional needs it seems like I spend too much time chasing other people to do their job. If all these supposed professionals just did they job they get paid for with prompting that would reduce my stress level by approximately 57.3% All together over the last two days I've spent about an hour on the phone to the GP surgery and then about another 45 minutes filling in forms online and about half an hour in the pharmacy. All because the surgery decided to take my kids of their books without telling me. That's over two hours of my time that could've been better spent scrolling through reels on Instagram. Anyway, here's a photo I took recently of somewhere nice a calm.
Comments
Post a Comment