Epilepsy in a growing child is just like the sword of Damocles. Hanging over you, waiting, you don't know when, but you do know that one day it's going to fuck your shit up.
A few months ago I decided I would like to try to put together a series of photos about life with a disabled son, the problems that arise and stuff like that. I'm not 100% clear on the brief myself but I thought it will become more apparent as time goes on. Eventually I was thinking I could display these in a gallery setting of some sort, I just need to develop the concept further until I'm happy with it. I'm only got nine photos so far and I'm not even sure I'll keep all of them but I thought I'd start sharing some of them here. This is the first photo I took. It's very dark and without context it's probably hard to see what's going on. This photo was taken at 3:07am. John wakes up most nights and it can be a struggle to settle him back down to sleep. One way I try to do this is just to climb onto his bed, sit him on my knee and cuddle him. Doing it this way I can attempt to stop him throwing his arms and legs round and he settles down agai...
It's that time again. School photos. Great yeah? No. I've got a camera, I'm perfectly capable of taking a photo of my sons. I take lots of phots and keep the best. I've got loads of great photos of my sons. So why do I need to sit my son in front of a stranger with a camera for 10 seconds, hope he is willing to smile then pay twenty odd quid for a few photos that aren't even that good? At least these days we get a choice of photos, we can either have sinister or serious. Not smiling or happy or laughing. When none of them are great, I'm not paying out for them. I not going to spend money on photos I don't want just because it's his first school photo.
So now that I'm not working it's time to claim some benefits. I've been paying into this system for long enough, it's time to get something back. Housing benefit was easy enough, I was able to do that online and while it seemed like quite a lot of questions I got there in the end. The payments for this have gone up and down and every time you give them some new information it's re-assessed. However, I think I've finally got my head around it and now it's time to apply for income support, or whatever it's called. I figured this would also be pretty straight forward, a quick search online and it seems I can apply over the phone, saving me a trip to the job centre. I phoned up. I was on the phone for about an hour going through a long list of questions. I was quite happy with this and at the end of the call I was given an appointment to speak to someone at the job centre. Not ideal but there are hoops you have to jump through and this was the first. I w...
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