Epilepsy in a growing child is just like the sword of Damocles. Hanging over you, waiting, you don't know when, but you do know that one day it's going to fuck your shit up.
A few months ago I decided I would like to try to put together a series of photos about life with a disabled son, the problems that arise and stuff like that. I'm not 100% clear on the brief myself but I thought it will become more apparent as time goes on. Eventually I was thinking I could display these in a gallery setting of some sort, I just need to develop the concept further until I'm happy with it. I'm only got nine photos so far and I'm not even sure I'll keep all of them but I thought I'd start sharing some of them here. This is the first photo I took. It's very dark and without context it's probably hard to see what's going on. This photo was taken at 3:07am. John wakes up most nights and it can be a struggle to settle him back down to sleep. One way I try to do this is just to climb onto his bed, sit him on my knee and cuddle him. Doing it this way I can attempt to stop him throwing his arms and legs round and he settles down agai...
It's that time again. School photos. Great yeah? No. I've got a camera, I'm perfectly capable of taking a photo of my son. I take lots of phots and keep the best. I've got loads of great photos of my sons. So why do I need to sit my son in front of a stranger with a camera for 10 seconds, hope he is willing to smile then pay twenty odd quid for a few photos that aren't even that good? At least these days we get a choice of photos, we can either have sinister or serious. Not smiling or happy or laughing. When none of them are great, I'm not paying out for them. I not going to spend money on photos I don't want just because it's his first school photo.
You know those days where you wish you could just go back to bed, have another's hours sleep then start again fresh? Well today has been one of those days. My day started at about half five when John woke up. As usual I changed him in bed before carrying him downstairs. He's usually quite active when he wakes up but while I was changing him this morning he managed to kick me in the face. Twice. This set me up for the day in a bad mood. Once you're in a bad mood, if you don't get out of it, your day is just going to get worse. I tried to cheer up, I really did. But I was just too tired to shake off my grump. The day was full of all the usual little things that normally wouldn't bother me. But today, thanks to my mood, they did bother me. I was overreacting and snapping at things, not thinking things through, acting before thinking. I even managed to launch poor Matthew down the back of the sofa, head first! Eventually the day came to an end. The ki...
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