Epilepsy in a growing child is just like the sword of Damocles. Hanging over you, waiting, you don't know when, but you do know that one day it's going to fuck your shit up.
A few months ago I decided I would like to try to put together a series of photos about life with a disabled son, the problems that arise and stuff like that. I'm not 100% clear on the brief myself but I thought it will become more apparent as time goes on. Eventually I was thinking I could display these in a gallery setting of some sort, I just need to develop the concept further until I'm happy with it. I'm only got nine photos so far and I'm not even sure I'll keep all of them but I thought I'd start sharing some of them here. This is the first photo I took. It's very dark and without context it's probably hard to see what's going on. This photo was taken at 3:07am. John wakes up most nights and it can be a struggle to settle him back down to sleep. One way I try to do this is just to climb onto his bed, sit him on my knee and cuddle him. Doing it this way I can attempt to stop him throwing his arms and legs round and he settles down agai...
It's that time again. School photos. Great yeah? No. I've got a camera, I'm perfectly capable of taking a photo of my sons. I take lots of phots and keep the best. I've got loads of great photos of my sons. So why do I need to sit my son in front of a stranger with a camera for 10 seconds, hope he is willing to smile then pay twenty odd quid for a few photos that aren't even that good? At least these days we get a choice of photos, we can either have sinister or serious. Not smiling or happy or laughing. When none of them are great, I'm not paying out for them. I not going to spend money on photos I don't want just because it's his first school photo.
If you don't know what this is about it's probably best to get the background from the first post here: https://sndad.blogspot.co.uk/2017/10/photography-project.html Ok, this is another image from the series. I like the concept but not sure about execution. You have to study the photo to see what's happening here, maybe that's a good thing. Anyway, in this photo I'm taking John for a walk with the dog. The dog doesn't want to stay on the lead walking the streets so I've got John in his off road wheelchair and we're going round a route I walk quite often. This could pass for an "other" road on an OS map and I've rode up and down here on my bike but pushing John up here isn't easy. The surface is scattered with large rocks and at the point I'm at it's very steep. However, John likes to be out and enjoys being out and has a good sense of adventure so as long as he's enjoying the ride then I'll take him anywhere I ca...
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