Failed at Napping

If you don't know what this is about it's probably best to get the background from the first post here:  https://sndad.blogspot.co.uk/2017/10/photography-project.html Ok, this is another image from the series. I like the concept but not sure about execution. You have to study the photo to see what's happening here, maybe that's a good thing. Anyway, in this photo I'm taking John for a walk with the dog. The dog doesn't want to stay on the lead walking the streets so I've got John in his off road wheelchair and we're going round a route I walk quite often. This could pass for an "other" road on an OS map and I've rode up and down here on my bike but pushing John up here isn't easy. The surface is scattered with large rocks and at the point I'm at it's very steep. However, John likes to be out and enjoys being out and has a good sense of adventure so as long as he's enjoying the ride then I'll take him anywhere I ca...

When you become a parent you pretty much forgo the opportunity to lie in bed undisturbed on a weekend. However, every now and then we have very little to do at the weekend. We use this time to lie in bed. Today I got up at about half five while my wife stayed in bed. By about nine she was up and it was my time to go back to bed. I quickly fell asleep. It was a beautiful sleep and lasted longer than expected. About half 11 I was woke by Matthew poking me in the eye.

When I say car, I mean van. When I say van I mean shed on wheels. I shouldn't really complain though. Whatever we get it will be bigger than the current car so we can fit more stuff in.

A few months ago I decided I would like to try to put together a series of photos about life with a disabled son, the problems that arise and stuff like that. I'm not 100% clear on the brief myself but I thought it will become more apparent as time goes on. Eventually I was thinking I could display these in a gallery setting of some sort, I just need to develop the concept further until I'm happy with it. I'm only got nine photos so far and I'm not even sure I'll keep all of them but I thought I'd start sharing some of them here. This is the first photo I took. It's very dark and without context it's probably hard to see what's going on. This photo was taken at 3:07am. John wakes up most nights and it can be a struggle to settle him back down to sleep. One way I try to do this is just to climb onto his bed, sit him on my knee and cuddle him. Doing it this way I can attempt to stop him throwing his arms and legs round and he settles down agai...

So far so good. I went back for the meeting with my booklet filled in. The guy there checked through it then proceeded to tell me all about how to apply for jobs through the job centre. Thanks but no thanks. Next step is to apply for carer's allowance and wait. This could be a long wait. Carer's allowance people take about 8 weeks to process new claims apparently. As I am applying for income support I need an income to support, this will be the carer's allowance that my wife was getting. Unfortunately you cant just transfer this from one parent to the other, so she had to cancel it and I had to apply for it. It's going to be a lean few weeks until this is all sorted but as long as I can pay the rent then I'll be happy.

The main problem with staying in hospital rooms is the total lack of ventilation. If you're lucky enough to have a window, chances are you can't open it. The rooms are super heated and there's just no airflow. This means that when I fart, it doesn't go anywhere. I have to pace around the room to try to get the air moving a bit to stir and hopefully thin out the atmospheric soup. After a few minutes of pacing this seems to work. Then you leave the room for a few minutes to get a drink of water and when you come back in the smell hits you. It never left, you just got used to it. You accept your fate and let another one go just in time for the nurse to come round for the obs.

Quick, hold him still while I take a photo! Still better than the school photo.